Catching ⚾️ Up With My Good Friend Sir 🤴🏼 Diffuse Midline Glioma ❤️

Mr. Donoberry
Aug 2
2 min read

-Chadwick Boseman (he actually did die from cancer though unfortunately)

May he Rest In Peace

Be wary for a lot of dark jokes and I have no clue who will read this, hopefully lots of distant family and friends who don't get it.

This is firstly to raise awareness for jortstop. We are fundraising for both the Jimmy V foundation and DonoStrong (me).

Not sure why I didn’t get listed first on the flyer (alphabetically, D comes before J; I’m friends with the host; and I’m still alive), but potatoes, tomatoes. I’ll take more money though—cough cough (desperate GoFundMe link plug here) cough cough.

I guess status wise, I am doing great actually (hopefully no jinx). I don't trust that all the time, but everyone is shocked with my recovery. I guess it was spicy with my life status 💀🙈 😵 in the ICU for a while at the beginning. (I have no memory of that so ask my family for any trauma). I couldn't talk and lost my left arm and leg (movement wise, they are on my body still). I atrophied pretty hard and dropped all muscle on my body. I also have a pediatric cancer, which means I DESERVE to have a make-a-wish, but I am an adult so I can't. They are holding the door shut (not very tightly because I am so weak). My cancer cells are methylated. which Doctors got very excited about. I guess its a 1% thing. idk look it up, I never did.

I did proton therapy and photon therapy radiation, Radiation made me sleepy. I recovered faster than expected in radition. I got neck and leg movement back early on. The Doctors were shocked. Eventually they discharged me before radiation ended, which was against there initial plan. I must give bitch vibes for all these low bar goals.

After radiation, I did physical, occupational, and speech therapy. I am also graduating from speech therapy. I could only say fuck for a while, and allegedly screaming and my mom, dad and Sylvia. There isn't proof of that and I am an angel. I don't believe it, but apparently anger is all people with aphasia can express at first.

I just took MRIs and had my review with doctors this week. I was hoping there was no new growth. Stagnant was my goal.

BUTTTTT I was told I actually had some tumors disappear, and they all shrunk. Apparently, that’s amazing news. The doctors made sure I knew how rare that was. I guess I’m just a very special person (interpret that however you want). Even my cancer is good—like an all-inclusive summer vacation at Georgetown Hospital.

So I am feeling hopeful for the future, with either chemo, immunotherapy. That I will continue to heal. Maybe just wait more and i'll shrink the tumors myself, no more treatment needed.

I know I am a sneaky douche (like Andy Passarello), but I genuinely appreciate everyone who reached out to me or my family. I'm shocked how many people donated, sent cards, called, or texted. I felt the love from everyone. I felt it helped me heal as far as I have. Job's not finished though. Back to work.